Massine's Story

" Over the past four years Massine and his family have been supported by Claire House Children’s Hospice."

Massine is six-years-old and suffers from very complex and serious medical conditions. He is deaf and blind and has an extremely rare condition that affects his feeding and swallowing, meaning he is fed by a tube into his stomach every two hours.

Massine also suffers from quadriplegia, a condition which means he is unable to use his limbs normally.  Because of this he spends most of his day in a wheelchair.

Despite everything, Massine is a happy smiley little boy, who like most children his age loves Mr Tumble.

Over the past four years Massine and his family have been supported by Claire House Children’s Hospice. He enjoys short trips to the hospice, giving his parents a break from the round- the- clock care they provide for his medical needs.

During his stay Massine loves spending time in the hydrotherapy pool, with its lights, colours and projector beaming his favourite films onto the walls.

The Claire House hydrotherapy pool means that Massine can move freely and relax. Independent of his wheelchair, he can splash and play. The warm water stimulates his circulation and relaxes his muscles, which can become sore and stiff from not being able to move independently.

Claire House currently cares for around 200 families like Massine’s whose children suffer from serious medical conditions. Claire House provides short breaks and therapies that allow families to create wonderful memories and bring back a sense of normality to family life. 

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