We realise this is a very difficult time for everyone, but we want you to know that at Claire House great efforts are being made to keep the children we care for safe and out of hospital. Working alongside our colleagues in the NHS, we have an important role to play.

For a full update from Claire House please visit – Coronavirus Update

Important Contact Numbers

Emergency Respite: 0151 334 4626
Symptom Management Telephone Advice Line: 07766 478404 (Monday to Friday 9-5pm)
Counselling and Family Support – General Support Line: 07500 882834 (Is a dedicated telephone number that will come through to one of the counsellors Mon-Fri 9am-5pm)
If you feel like having a chat with one of the team would be useful in helping you with general coping strategies, expressing some feelings or checking out any of the ideas and tools that they have been publishing for the past two weeks across Facebook, then please don’t hesitate to pick up the phone.

Announcements

Shielding Letter from Susie Holt

Please read this letter from our Palliative Care Consultant, Susie Holt.

 

Our Director of Clinical Services, Jan Sutherland-Oakes, has been sharing important announcements on the Claire House Parents Facebook.

Please see below her latest posts:

 

Update from Together for Short Lives

On 4 April at 10:21, Jan shared an important update from Together for Short Lives:

“IMPORTANT
Please see this urgent message from Together for Short Lives. We know we have all been told to stay home, but If you have concerns about your child’s health, PLEASE do seek medical help asap. Contact your local children’s ward if you have direct access or take them to A&E if you are really worried about them.

Together for Short Lives post on 3 April at 17:06

We know that everyone is trying to do the right thing by staying at home during the coronavirus crisis. But we are very worried parents caring for children with… life-limiting conditions might be too frightened to seek urgent medical help.

Please trust your own judgement and don’t delay if your child needs help.

You know your child better than anyone else, and if you think your child is unwell or deteriorating you must seek medical help. Doctors will want to make sure that your child is treated before their condition deteriorates. Contact your GP & don’t be afraid to use A&E when you need it.

Please share this post with other families caring for seriously ill children today. Read more.

Update from Together for Short Lives – Families caring seriously ill children must seek urgent medical help if their child becomes unwell

 

Service Provision

Jan has also shared on 2 April at 9:23 Claire House’s Service Provision as of 23rd March.

Please visit this link – Service Provision Update – for the full details.

 

Other Useful Information Sources

Latest Government Advice

Government Website

 Guidance on Social Distancing

 

Up to date NHS Advice and Information

NHS Website

The Royal College of Paediatrics & Child Health

The Alder Hey Covid Hub

Together for Short Lives