Support During your Journey
The perinatal team provides support to families whose baby has been diagnosed with a life-threatening condition, this difficult news about your baby’s health may come during your pregnancy or after your baby is born. With the experience and knowledge gained through our work with families and the relationships we have developed with Fetal Medicine and Neonatal teams, we are able to advocate and support families through their journey, which is often filled with anxiety and emotion.
Our aim is to provide a safe, compassionate, and caring environment for parents to explore their wishes, process their emotions, as well as encouraging them to find hope and meaning through their journey. We offer choice to families and through a shared decision-making model and guide them to explore their wishes. This may range from maximising their baby’s quality of life and focusing on their comfort to life-prolonging treatment and care. Please be assured the team provide support for all wishes and eventualities and in your chosen place of care, be that hospital, home, or hospice.
How we can help
Support When Your Baby Arrives…
We understand that having a baby on a neonatal unit can be a very stressful time for families. The perinatal team can provide emotional support and guidance to parents through this challenging time and work closely with the staff on the neonatal unit to provide family centred care.
We offer a relaxed and friendly opportunity to chat through any worries you may have and help bring a little light to your day by creating some lovely memories with your baby.
If the Worst Should Happen…
When a baby sadly dies, we provide both practical guidance, information, and emotional support for families. We help guide families through some of the choices that are required at such a difficult time, explaining some of the formalities involved and offering support with funeral arrangements.
At the hospice we have two dedicated ‘Butterfly bedrooms’ where your baby can stay, as an alternative to a funeral home, after they have died. We are also able to support you if you wish for your baby to rest at home before the funeral.
The Perinatal Team run a monthly support group for anyone affected by the loss of a baby. The meetings are a form of therapeutic support run by one of our counsellors alongside the perinatal nursing team. The group allows families the opportunity to talk openly with bereaved families who have gone through similar experiences.
- Diagnosis of a life-limiting/life threatening illness made in the antenatal period.
- Referrals accepted at any gestation.
- Extreme prematurity
- Diagnosis of a life limiting/life threatening condition in the neonatal/infant period
- Uncertain prognosis e.g. HIE
Bereavement Support Referrals
- Death of a baby in hospital (neonatal, paediatric, or maternity services)
- Death of a baby at home
- Referrals for bereavement support for a baby still born will be considered on an individual basis