Who do we help
Claire House has been supporting families and providing care for children and young people across Merseyside, Cheshire and North Wales since it opened in 1998.
The hospice was extended in 2007 to provide purpose built facilities for young adults. We are currently providing care for over 200 babies, children and young people and supporting more than 200 bereaved families.
What to expect next?
The referrals team will complete a holistic needs assessment to get to know your child and family, this assessment enables families to tell their story. We wish to get to know families wishes, hopes and fears and how we can best support you as a family. The team will look holistically and ask about day to day needs to discuss with you and the team how to best meet your child current needs, which can be reviewed when required.
What to expect when your referral has been accepted?
Once your child has been accepted, a member of the referrals team will contact you to let you know. This will also be confirmed in writing to you and the professionals involved in your child’s care.
Every child and family will then be allocated to a team: if you have been accepted into our community teams or family support teams then a member of the team will contact you to make arrangements to arrange your care and support plan.
If your referral was respite for your child at the hospice, the referrals team will work with you and keep you updated along the way. They will invite you to the hospice for a first visit and to have a look around, you are welcome to ask any questions and meet members of the team. The referrals team will arrange to meet with you to develop a detailed care plan for your child’s care when he/she comes into the hospice, this could take place at the Hospice, our Liverpool site or at your home.
The team will discuss bookings, teams and CH services with you. Parents are asked to stay with their child during their first stay but it is up to you whether you stay for any future visits.
You are welcome to explore, ask any questions, provide feedback and discuss a plan for future stays.
All families are entitled to emergency respite. Reasons to request emergency respite can include family bereavement, parent/carer exhaustion, parent/carer illness, step down from hospital after a prolonged stay or following major surgery, breakdown of care package and significant building work at home.
What to expect if your referral has not been accepted?
If your child does not meet Claire House eligibility criteria you will receive a telephone call to inform you. The decision will be confirmed in writing to you and the professionals involved in your child’s care.
We will also endeavour to signpost you to other services which may be able to offer help/support for you and your child.
We also encourage you to contact us again if circumstances change in the future as we would certainly re-assess the situation.
Should you wish to appeal then please write to:
Mrs J Sutherland-Oakes
Director of Care
Claire House Children’s Hospice
All parents are encouraged to contact Claire House if they have any questions or anything they wish to discuss.