Claire House was rated as ‘OUTSTANDING’ by the CQC in 2019, who highlighted that children ‘receive outstanding care from exceptional staff who are compassionate, understanding, enabling and who have distinctive skills in this aspect of care’ (CQC 2019).
Claire House is a 24 hour, seven days a week service and offers a range of services that can support children and families in a number of ways based on the individual child and family’s needs. This can be provided at Claire House or at home and can be for the child, young person or for family members.
The whole team at Claire House Children’s Hospice work together to help children and young people live their lives to the fullest, helping them create wonderful memories with their friends and family and bring back a sense of normality to their lives however short that time may be. Claire House can also offer support to the wider family, including siblings and grandparents.
Symptom management and step down care
Many of the children and young people accessing Claire House services may experience some difficult symptoms throughout their lives, whether that be pain, nausea, respiratory difficulties, seizures, spasms and will require assessment and management.
The Hospice to Home team are able to work in partnership with the child’s consultant and other professionals involved to assess symptoms, implement any symptom management plans and review how effective they are.
Step down care (help leaving hospital) following prolonged hospital admission or major surgery (e.g. spinal rods) can also be arranged to support parents prior to going home.
In addition to conventional medical and pharmacological approaches, with agreement from the child/young person’s consultant we can offer complementary therapies i.e. reflexology, aromatherapy, reiki etc. to aid symptom management.
We do not have a specific day care service, however, many of our services and activities can be accessed as a planned day case.
Services on offer include hydrotherapy, complementary therapies, music and play therapies. Our successful ‘Parents and Tots’ group runs fortnightly and provides a gentle introduction to all hospice services for very young children. Some of our young adults do access the hospice for an immersive bath not available to them at home.
Hospice to Home
The Hospice to Home team brings all of the services offered at the hospice into the family home in order to offer choice to children/young people and their families.
The team are based at Claire House and a satellite base in Liverpool.
They visit children and young people from across Merseyside, Wirral, Cheshire and parts of North Wales.
The services offered are:
From music therapy and hydrotherapy through to reiki and Indian head massage, as part of Claire House’s complete and total approach to care, we offer a wide range of alternative and complementary therapies for our children and young people and their families.
End of life care
End of life care is the priority for Claire House and we will endeavor to respond to all referrals or requests for end of life care at the hospice or at home. The care team have the skills and expertise to support and manage complex symptom management as well as the significant emotional and practical support each family needs. The team will pull out all the stops to make opportunities to create final memories and experiences for families. At the hospice the family can stay with their child throughout as needed with support at hand for the whole family.
We have two dedicated ‘Butterfly bedrooms’ where a child can stay as an alternative to a funeral home after they have died. The care team are available to provide emotional and practical support to help families in these early days of bereavement and in arranging the funeral.
Who we work with
At Claire House we will work closely with the full range of health, social care and other professionals involved in any child’s care as well as education and other voluntary sector providers. We have a specific relationship with Alder Hey Children’s Hospital, including the specialist palliative care team (SPCT).