The complexities of transition
The amount of options available to young adults and their parents can be overwhelming, a lot will rest on which options are available in your area or due to the diagnosis or condition, some young adults with the most complex health needs qualify for Continuing Healthcare (CHC) funding this is applied for via a social worker and is then assessed by an independent nurse, if you are accepted then you can either take control of your own personal health budget (PHB) or you can employ a third party (agency) to take care of it, however none of this is straight forward and can require many hours of research, admin and form filling.
For some others you may not qualify for such funding so you will be offered services from social care instead of the NHS, this offer should still put the young adult at the centre and some negotiating maybe required to get the right services in place, what they offer may not be what is required so again a bit of research might help when trying to find an appropriate day centre or service.
I would love to say that we are complete experts in all things transition but I’m afraid no one is as it’s just too big for anyone to have a complete picture especially when every local authority and area offer different things with different assessments and criteria, we will however always try our best to help you find out and help you get to where you want to be.
Another key difference in the adult world is how parents /carer’s can be viewed or dealt with. As we all know, as a parent you have parental responsibility for your children until they turn 18. This allows you as a parent to have the right to be consulted about all decisions regarding your child, however there are some exceptions to this rule, such as if the young adult is assessed as fully competent to make their own decisions. Once your child has turned 18 and becomes a legal adult, the rules change and the how the role of the parent is viewed, can vary between different professional’s depending on their own understanding of the mental capacity act (2005). There is lots of evidence out there to prove that most medical professionals in the adult world need to have a better understanding of the Mental Capacity Act. At Claire House we cannot control this, but we can support our families by giving them the awareness and support needed to understand these complex changes, and how they affect you as a parent and your involvement in your son or daughters transition and specific medical decisions.